New ITU-T Study Group 5 Structure and Deliberations

The NTT Group is participating in the international standardization activities in the International Telecommunication Union - Telecommunication Standardization Sector (ITU-T) Study Group (SG) 5 to protect telecommunication facilities from electromagnetic interference and lightning surges, assess the impact of information and communication technologies on climate change, address the issue of a circular economy that enables sustainable development, and contribute to improving the reliability of telecommunication services and reducing the environmental impact of its business activities. In this article, we introduce the study structure of ITU-T SG5 for the new study period (2022–2024), which has finally started due to the COVID-19 pandemic, as well as the latest discussion trends at the first meeting held in June 2022. © 2022 Nippon Telegraph and Telephone Corp.. All rights reserved.

The prevalence of stigma in a UK community survey of people with lived experience of long COVID

BACKGROUND: Stigma can be experienced as perceived or actual disqualification from social and institutional acceptance on the basis of one or more physical, health-related, behavioural, or other attributes deemed to be undesirable. Long COVID is a predominantly multisystem condition that occurs in people with a history of SARS-CoV-2 infection, often resulting in functional disability, which limits day-to-day activities. We aimed to quantify the burden of stigma experienced in a community-based sample of people with lived experience of long COVID. METHODS: Data from the follow-up of a long COVID longitudinal online survey was used. The survey was coproduced with people living with long COVID. 13 questions on stigma were included to develop a Long COVID Stigma Scale capturing three domains: enacted (overt experiences of discrimination due to long COVID), internalised (internalising negative associations with long COVID and accepting them as self-applicable), and anticipated (expectation of bias or poor treatment by others) stigma. Data were collected through a social media survey with convenience non-probability sampling. FINDINGS: 966 (47·9%) of 2016 participants from the UK completed the follow-up survey and 888 responded to the questions on stigma. The mean age of respondents was 48·3 years (SD 10·7), and 84·6% identified as female. Roughly half (n=460, 50·4%) reported having a formal, clinical, long COVID diagnosis, and of these, 440 responded to the questions on stigma. The prevalence of people experiencing overall stigma at least sometimes was 95·4% (n=847), prevalence of enacted stigma was 62·7% (n=557), internalised stigma was 86·4% (n=767), and anticipated stigma was 90·8% (n=806). Prevalence of stigma was higher in respondents with a formal diagnosis of long COVID (97·5%;n=429) than in those without (93·2%;n=413). INTERPRETATION: This study highlights widespread and multilayered stigmas experienced by people living with long COVID in the UK, which presents a serious public health concern. The broader literature on stigmatised health conditions consistently suggests that stigma drives people away from health services, contributes to psychological distress, and compromises long-term physical outcomes. The higher proportion experiencing stigma in those with clinical diagnosis of long COVID might be indicative of stigma within the health-care system. Findings from this study should be taken into consideration within clinical practice and health care, social care, employment, and education policies. FUNDING: None.

Fractured bonds and crystal capital: Social capital among COVID-era music communities

As COVID-19-driven lockdowns and social distancing became the new normal in 2020, musicians experienced a reshuffling of their social networks. This article uses in-depth interviews with nine community arts practitioners in Australia, Norway and the United States to explore the impact of COVID-19 on their ability to practise, collaborate and connect with their musical communities. Results showed that, while social distancing has significantly disrupted active connection with localized communities and musical networks, participants reported increased connection and engagement with wider networks through technology. Applying Putnam's concepts of bonding and bridging capital, the authors posit that COVID-era music engagement has seen a shift towards decentralized communities through an emphasis on bridging capital. Ultimately, however, analysis showed Putnam's concepts to be unhelpful in describing online music connections, and 'crystal capital' is proposed as a possible way to theorize the subjective nature of online music engagement.

Bridging the gap: Development of a patient public involvement group

AIMS: Every year, the Queen Elizabeth Hospital Birmingham (QEHB) neuro-oncology team review over 2000 individuals with brain tumour. Patient and public involvement (PPI) has been fragmented to date. Initially we invited two patient advocates and a core group of allied health professionals to meet virtually to discuss development of a local PPI group, its aims, specific goals, and timescales to maintain momentum. In March 2021 we launched "BERTI: Brain tumour Education and Research paTient and public Involvement group, West Midlands". Our inaugural meeting will be virtual in April 2021 and will be followed by three meetings per year. METHOD: We developed information leaflets to promote the BERTI initiative. A membership form has been developed to record baseline information (non-clinical) e.g. contact details, which tumour type the individual is interested in, which aspect of BERTI they are interested in (Education, Research or Clinical service development). Patient advocates have reviewed all patient and public facing forAll forms have been checked by Information Governance at QEHB to ensure General Data Protection Regulation compliant. Contact details and non-clinical data will be stored in a password protected database on a NHS computer network. Information to ensure members can unsubscribe from this group is easy to find and will be done immediately. A BERTI email account has been set up with a core group of professionals having access who are all fully trained in data protection and have GDPR certification. We will produce an annual BERTI newsletter. RESULTS: BERTI is a group for people affected by brain tumours in any way. We include patients, friends and family, health professionals and researchers who are committed to improving the care of people with a brain tumour. It is run between the QEHB and University of Birmingham (UoB). BERTI provides a forum to meet other people affected by brain tumours and-Share experiences;-Understand the condition better;-Work with clinical staff and researchers to improve clinical care and facilitate research for people living with brain tumours. We will meet three times per year, virtually at the moment but face to face once Covid restrictions ease. We will have a formal talks explaining certain aspects of brain tumour or research initiatives. Throughout, there will be dedicated time set aside for group discussions to promote a genuine two-way dialogue between health-care/research professionals and individuals affected by brain tumour. CONCLUSION: The PPI group will be allowed to evolve rather than start out too prescriptive. It will capitalise on its strengths and skills of its composite members. There are no set models rather principles that will provide the foundations for a group which is supported to fulfil their specific purpose. The views of the PPI group will be presented at the quarterly NeuroOncology Multi-disciplinary team business meetings to provide a forum to discuss issues. We aim to foster a PPI friendly environment, deliver real engagement and involvement across the group.

Food in the time of coronavirus: why we should be very, very afraid

The social legitimacy of the 'COVID-19 lockdown', government's regulations imposed to contain the spread of the virus, is most likely to run aground unless an urgent plan can be made to ensure that everyone in the country has access to sufficient food. And it's not looking good. Based on interviews, statements by various organisations and our own experience, here is our summary of the already-evident impacts of the lockdown on poor people's access to food, and on the informal food economy - from small farmers to street vendors and spaza shops - that is so important in meeting people's daily food needs.